I will one day write a book with that title… and it will an a memior.
I bit the bullet and went back on Topamax for my complicated migraines. I loved the weight loss side effect this drug gave me last time around: 30 lbs off with no effort. It did make pop taste like vinegar, so that did help a bit. 
And I reintroduced myself at the Topamax Trip community I used to frequent on a daily basis when I took the Topa Trip for a year. I got off the miracle drug which took my migraine to practically non-existant, because we thought it wasn’t working when we now think it was just estrogen surges from the evil Depo Provera shot the doc had me on.
And so now as I titrate up my Topamax ladder, I find my migraines becoming more and more managable but other things falling apart. We still don’t know what is going on with the whole peeing too much thing. I got some lab values back and my thyroid antibodies are high, which points to Hashimoto’s Thyroiditis. Then I get my 24 hour urine Cortisol back and it says my volume is high (by 1500 cc’s) but my creatinine is fine. So…. not diabetes insipidus??? I’m so confused? Why I’m I so thirsty? I don’t know.
And now, as if I need anymore going on in my life, I start passing bloody stool! The first time catches me off gaurd and I think it must be a hemmie and don’t think anything of it. Yes, the amount of blood did make me a bit breathless for a while, but I went on with my day. Of course my grandma, who was there and lost her mother to colon cancer (so I understand her craziness) freaked and through the cancer word around like it was water. She wanted to rush me to emergency right away, which was ridiculous. But I promised I would see the doctor if it happened again. And, well, it did, the next day. This time the stool was covered in this like bloody glove of mucus and I’d never had anything like that in my life! This time I was flipped. Of course, it was 10 at night on Friday. I wasn’t going to ER. I waited till Monday and saw my own doc. It didn’t happen all weekend; instead I didn’t go but tiny balls all weekend,which means constipated. Goody. But how did I go from very regular to constipated? The doc says, “oh, let’s not throw the cancer word around. Let’s say Chron’s, Colitis, maybe even just Diverticulitis. It could just be one of those. Let’s scope you and see.” I sighed and thought to myself, great.
I’m behind on my school work and I’ve got “active GI bleeding with mucus” with some thyroid antibodies and high urine output and some Topamax. And I’m thinking, when it’s all said and done, they can just list all my conditions on the back of my tombstone and people won’t have to ask what I’ve died from – they can just read the list and go “oh, ok.”
Posted by Kim on August 28, 2008 at 3:42 pm
Hi endochick,
My name is Kim and I also am a endo chick. I go into surgery 1 to 2 times a year to have it cleaned out. Tried everything and this am having the same bloody stool and bloody mucus. Had hamburger helper last night thinking and hoping that it will clear up and maybe it is the tomatoe that I ate. What was the outcome of you scope. I hope all is well with you and everything is o.k. How long have you had endo? I have had it now for 24 years and am getting really tired of it and also expensive.
Please let me know how it went for you!!
Kim
Posted by candacestrange on November 21, 2008 at 7:32 pm
Hi. I am also on Topamax. How long were you on it before u lost 30 lbs? I’m so excited its actually working for my migraines, and I’m being extremely cautious and aware of the side effects. Especially, I am awaiting for me to experience the “stupids.”
Posted by ckb on March 21, 2009 at 7:58 pm
I have always had GI issues as well, including severe constipation as a child. After my laperoscopy to remove my gall bladder, an Ovarian cyst and excess tissue, along with my Gyn’s discovery of endometriosis and a chocolate cyst on the colon, everything was smooth sailing so to say. in the past few months I have been struggling with bouts of diarrhea, cramping and mucus/bloody stools. At least one or two days a week. The college health center put me on Donnatol and that helped but it is still happening… I have tried cutting out dairy and fats (without a gall bladder they are not digested well) but no change, I mentioned maybe another absess on my colon due to the endo and all i got in response was “could be” but no investigation or referrals. Don’t cha just love when you know something is wrong but docs don’t take you seriously?