Archive for May, 2009

Something is Burning

It’s been a a while since I’ve had the pleasure experience of smelling the smoke lingering about me. If you’ve read my previous “smoke smell” posts, of which there are many, you’ll know it’s a smoldering, burning smell not a cigarette odor. It can be consumingly strong at times.
Well, it had disappeared and I noticed [...]

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ME/CFS

I know I missed Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) week (May 12-17) but I wanted to post this now.
I was just visiting their Blue Ribbon Campaign for ME/CFS website and came across a ME/CFS Memorial. This particular page moved me to tears. There are memorial’s left of women, many of whom were in their [...]

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Electrolyte Imbalance

Before anyone shoots me —- It was a mistake… that’s all I’m saying. But I think my electrolytes are out of balance and wondering if it’s early enough that a couple Powerades will do the trick. It all started 2 nights ago…
I take desmopressin tablets – 2 0.1 mg tablets every night before I go [...]

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50 Years Is Too Long To Wait Petition

I urge everyone to please sign The Lupus Alliance of America LI/Q Affiliate ’s Petition - “Help those with Lupus! Half a Century is too Long to wait for new medications!” Petition .
May is Lupus Awareness Month and what better way to help those plagued with Lupus fight for better medications than to sign this petition [...]

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Up last night

It happened again - late last night, I received the visit. Endometriosis came to call. The ringing doorbell… an excruciating buzz that said “I’m at your door. It’s too late to hide under the table; I see you,” reverberated in my ears.
I mustered the strength through the nagging pain in my groin – that same gut wrenching [...]

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“I have Endometriosis!” Now what?

You doctor gives you the results of your laparoscopy. He/she shows you the picture  of your uterus, ovaries, cul de-sac, all splotched up with red, pink, purple-ly looking blobs of jelly looking gunk. He grabs another shot; there are some cobwebby things strung all over your pelvis and they remind you of left over Halloween decorations. What is [...]

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Protected: Dad Update

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Graduation Pictures!

Here are my graduation pictures. I’m doing them with WordPress’ Photo Gallery option as to avoid the long page loads as these pictures are rather large. With this option, I can blog them in thumbnails and if you so choose, you can click on them and expand them. Enjoy!
Top Row: My husband and I; My [...]

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Protected: Short Dad Update

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Protected: Update on my Dad

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