Welcome home, Dysautonomia. Will you be staying for the summer?

 

I thought that perhaps I had managed to escape the dreaded dysautonomia monster. Just maybe this year I could be free from its weakening, heart thumping, exhausted grip. I was wrong.

Dysautonomia arrived Saturday. I thought I was just tired from staying up late the previous night. Then it dawned on me that after 9 hours of sleep, I should not be tired. At least that tired. I could barely climb out of bed and my body felt as if it weighed a ton. At first, I thought I was coming down with something. As the day wore on, and I exposed myself to more heat, I noticed how easily overheated I was becoming. Then I would get weak and dizzy, and at one point, I even had to sit down and catch my breath. This is not normal for someone who runs an average of 12 miles a week.

 That night, once the sun was setting and it was a tad bit cooler outside, I dared a run. 1.15 miles in and I had to throw in the towel. I flopped down in my desk chair, in the air-conditioned living room, and slowly began to feel normal again. It was allergies, I told myself. Just allergies.

Then Sunday morning I awake and go with the family for breakfast. Then I went with my husband to the walk-in-clinic and took the kids up and down on the see-through elevator for 20 minutes. It was rather warm there seeing, as the front of the building is four stories of glass wall. The sun beamed in and I get weaker. My head swam more when I went to Wal-Mart (the windows down because I LOVE fresh air), and got worse again after leaving the grocery store. The sudden change from and ice-cold environment to hot and muggy made me get very weak. Thinking I needed to eat, I broke open the raspberries and ate some on the way home. Yet this was not helping.

 When I got home, I drank some water. Perhaps I was dehydrated. It took a while before I was feeling somewhat normal. Then I took a shower. Not a HOT shower, but a warm one. I noticed that afterwards I was so weak that it took everything in me to get dressed. It was then that I realized this was not allergies. It was not a cold, either. It was dysautonomia.

 I spent Sunday in air-conditioning. I took it very easy – writing and reading. Today, I am starting to feel truly normal again. At least for now.

 I guess life would not be interesting if it did not throw you the occasional curve ball….

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One response to “Welcome home, Dysautonomia. Will you be staying for the summer?

  1. Oh Endochick!

    I am so, so sorry! 😦 I know you do not need this right now!

    Well, I have been having “sympathy dysautonomia”. Yesterday, I was so dizzy and felt so sick it wasn’t even funny. This occurred right after sitting in the sun for two hours. While I sat under an umbrella for shelter, it was very hot.

    I’m so very sorry. Dysautonomia is not fun at all.

    Jeanne

    P.S. I did find latex-free compression hose and I’m hoping they’ll help me avoid fainting. We’ll see.

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