I am jumping on here to give a shout out of THANKS! to Jeanne over at Chronic Healing. She is doing a stellar job bring awareness to my research study.
To everyone who has participated thus far, THANKS! The information I have gathered has been very eye opening. So far, and it is still early, there seems to be a correlation between how disease diagnosis is being communicated to the patient (in most cases poorly with very little communication) to how patients handle the symptoms/progression and their ultimate surgical and medicinal methods to control pain and disease growth. For those women who have provided generous feedback at the end of the survey, THANKS! These accounts of failed doctor visits, failed surgeries, forced treatments, little to no options, and being labeled “hypochondriacs” reinforces the need for better physician/patient communication with this disease.
I am excited to be working on this and having so many of you willing to participate. Keep the information coming!