March is practically over with. Isn’t it?
Where did that go??
I remember in 2009, Jeanne from Chronichealing.com and myself were plastered on Twitter (#marchbloggingmadnessforendometriosisawareness) (can that win a prize for longest Hashtag, or what?). We were posting every day. Retweeting and being retweeted by the minute. Things looked promising for our quest to bring more awareness to this silent disease.
And despite issues that forced us from using the Twitter medium, we really made some headway. 2009 was brilliant in that respect. Globally, endometriosis was getting a voice. And for those us of who have it, it no longer was being referred to as a mere painful time of the month issue.
Since 2009, our voices are still being heard. Various media outlets have heard the call. They are doing stories and writing articles. But we still have a hurdle to jump over. Don’t we?
I am still finding the occurrence of misinformation popping up in my Google feed. Women still leave messages on this blog on how they were misdiagnosed, under-treated, or ignored by the healthcare establishment. There are still uniformed or misinformed spouses, partners, co-workers, bosses, friends.
In a time where we can connect globally via e-mail, Facebook. Twitter, Google+, blogging, and chat rooms, there are still women struggling alone in this. There are still loved ones clueless to help.
So I am leaving Endometriosis Awareness Month 2012 with a question, a question that will be addressed in my book.
Where do we go from here?