Tag Archives: women’s health

The Healing Comfort of Heat

To have the relief of comforting heat again… it’s priceless. Regular readers know that my EndoFEMM heating pad bit the dust recently (My Endofemm hit the dust). As readers commented on the post, the news got back to EndoFEMM’s creator Babette Gray, who promptly contacted me and graciously offered to replace the pad with a newer version. I couldn’t believe it! Thank you again, Babette for your assistance in getting a new pad out to me, and so quickly!

The new EndoFEMM pad is filled with flax seed versus the bulky corn kernels that I was used to. At first I wasn’t sure how I would like this. Would the heating be as strong or even? I have used the heating pad three times since it arrived on my doorstep, and believe me, the heating hasn’t failed once! The flax seeds provide a steady and even heat. And unlike how the corn kernels had been heating in my older pad before it burned up (hmm… go figure), the flax seed temperature is a comforting, temperate heat, not a blistering heat.

The fabric on this new pad, too, is a great improvement. The older pad had a fleece cover, which is soft. But the new cover is a pillowy, downy fabric that is gentle to the touch. It’s just softer than the fleece fabric, that, to be honest, pilled up after a year or so of being heated in the microwave.

And finally, the adjustable straps. The older EndoFEMM pad had removable pads that clipped on. I had the pad for a few months before I lost one of my straps. I considered buying replacements straps, but since I misplace straggling parts all the time — I tend to avoid buying things that come with attachable parts due to this fact — I never bothered. Just the fact that I wasn’t attached to a wall outlet with this heating pad was a welcome change. (After years being chained to the couch or bed, a traditional heating pad clutched to my stomach, this cordless version was nice.) So when I unwrapped this newer, strap-sewn-on version, I was impressed. I love it! Now I can’t misplace the straps. And there’s no hard plastic bits to rub against when you roll over, or strap to tangle up. I am really pleased with this new feature.

Overall, the fact that my old EndoFEMM pad — which I used for countless hours of endometriosis pain relief (among other uses!) — keeled over was a blessing. This newer version is a highly improved upgrade on what was already a wonderful product for women suffering from endometriosis and pelvic pain.

Now onto a much deserved… and hopefully pain free… nap…

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Neglectful

This post contain neurological and gynecological medical subject matter (“women issues”). If this does not interest you, please do not read.

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Mirena Insertion/Eye Pain Saga

This post contains neurological and gynecological subject matter. Read only if this does not offend you.

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Never too young to be diagnosed

There is a common theme occurring with endometriosis, as well as other formerly obscure illnesses, where more people are being diagnosed or younger people are being diagnosed. Or both. 

With endometriosis, it seems both. 

Since the creation of this blog, I’ve noticed a trend with more and more patients looking for a diagnosis or post-diagnosis information. Each year, more and more people are asking themselves and their doctors, “do I have endometriosis?” 

And what has started to shock me are some of the ages these patients are. A mother once e-mailed me about her newly diagnosed 12 year-old daughter! 

While sifting through my backlogged endometriosis Google feed, I discovered an article about teenagers secretly suffering with endometriosis. 

In the article, we are introduced to a teenager who began experiencing pain and it took experts at seven specialists, three different hospitals and multiple tests and procedures to find the culprit! Read the article here: Secret Suffering: Teens with Endometriosis and Baffling Pain

The article highlights the fact that endometriosis is being found in more and more younger women and is no longer an adult disease. And we should stop thinking about it that way. We must remember the ability to reproduce, and thus being susceptible for endometriosis, starts with the first period. Not when someone becomes sexually active! 

Here is an excerpt of interest from the article

Endometriosis is often perceived to be a disease of adulthood. Years ago it was cast pejoratively as “a career woman’s” condition that mostly hit older women who had delayed child-bearing. But in fact, endometriosis frequently begins in adolescence. It can be passed genetically from mothers to their daughters; there is no cure

 

THERE IS NO CURE!!! 

The teenager, Emily Hatch, also tells her story in a soundbite linked within the article. The article has some good visuals, talks about a 2004 research study, and more. 

Endometriosis UK brings in £800+

The following link will take you to a short article from the Birmingham Mail regarding Endometriosis UK’s charity fundraiser, held to mark the ending of Endometriosis Awareness Month.

Great job, Endometriosis UK!!

Your Charity: Dinner is tasty for Endometriosis UK – Your News – News from @birminghammail.

Endometriosis Awareness Month: Where did March go?

March is practically over with. Isn’t it? 

Wow. 

Where did that go??

I remember in 2009, Jeanne from Chronichealing.com and myself were plastered on Twitter (#marchbloggingmadnessforendometriosisawareness) (can that win a prize for longest Hashtag, or what?). We were posting every day. Retweeting and being retweeted by the minute. Things looked promising for our quest to bring more awareness to this silent disease. 

And despite issues that forced us from using the Twitter medium, we really made some headway. 2009 was brilliant in that respect. Globally, endometriosis was getting a voice. And for those us of who have it, it no longer was being referred to as a mere painful time of the month issue. 

Since 2009, our voices are still being heard. Various media outlets have heard the call. They are doing stories and writing articles. But we still have a hurdle to jump over. Don’t we? 

I am still finding the occurrence of misinformation popping up in my Google feed. Women still leave messages on this blog on how they were misdiagnosed, under-treated, or ignored by the healthcare establishment. There are still uniformed or misinformed spouses, partners, co-workers, bosses, friends. 

In a time where we can connect globally via e-mail, Facebook. Twitter, Google+, blogging, and chat rooms, there are still women struggling alone in this. There are still loved ones clueless to help.

So I am leaving Endometriosis Awareness Month 2012 with a question, a question that will be addressed in my book. 

Where do we go from here? 

 

Endometriosis Awareness Month: It’s all in the details

I’ve begun the conceptualization phase of my book. I’m trying to sift through the years worth of posts on this blog to find the hidden jewels. I want to grab those posts that continue to bring in traffic, continue to attract comments and discussion, and that accurately convey the total experience one goes through when  living with endometriosis. 

Readers know that endometriosis is not the only chronic illness I deal with. For the purpose of the book, however, I will ONLY focus on endometriosis. How my life and the choices I make affect and are affected by the disease. 

I promise the book is going to be as raw and honest as each post I’ve written here. Nothing will be held back. 

Why? 

It’s because of you. All of you! 

Everyone who has commented, e-mailed, Facebooked, or Twittered me (back in the day when I had a Twitter presence, that is) about how they no longer felt alone because of how vividly honest my entries were. How I identified their pain by cataloging my own. 

I’m looking forward to this project. And I sincerely hope that each and every one of you can take something from it. 

Remember: together, we are not alone. Together, we are strong.