From the shadows I emerge… (endometriosis awareness month)

I’ve been absent from this blog since, it appears, September. I neglected to check my Endochick email, as well. This wasn’t intentional, mind you; I’ve been overwhelmed. It wasn’t until today — until a good friend reminded me, actually — that I realized Endometriosis Awareness Month was 1/2 over with (or nearly there). 

March 2009, this blog teamed with ChronicHealing.com for an awareness event that weaved social media and blogging. Over 3,000 tweeters tweeted #MarchMadnessforEndometriosisAwareness. People Facebooked. There were daily blog posts devoted to the disease — from coping with pain, to treatment options, to talking with your doctor, to fighting for a cure. Men and women came together to shine a face on an isolating invisible, chronic illness.

But here I am five years later, too busy to fight the fight. My email — littered with Ask Endochick questions and pending comment notifications — sits unopened for months. And my blog, missing months of posts. I wish I had more time. I do. 

I wish, too, that I can find the time to sit and collect the patient safety data I have. For my ultimate Endometriosis Awareness goal would not be a month full of posts, as it was in 2009. But a navigation guide to keep us all safe in the endo world. 

Until I’m able to post again (and let’s hope it’s not long), keep up the fight! Remember, we are stronger together. 

Endometriosis UK brings in £800+

The following link will take you to a short article from the Birmingham Mail regarding Endometriosis UK’s charity fundraiser, held to mark the ending of Endometriosis Awareness Month.

Great job, Endometriosis UK!!

Your Charity: Dinner is tasty for Endometriosis UK – Your News – News from @birminghammail.

Endometriosis Awareness Month: It’s all in the details

I’ve begun the conceptualization phase of my book. I’m trying to sift through the years worth of posts on this blog to find the hidden jewels. I want to grab those posts that continue to bring in traffic, continue to attract comments and discussion, and that accurately convey the total experience one goes through when  living with endometriosis. 

Readers know that endometriosis is not the only chronic illness I deal with. For the purpose of the book, however, I will ONLY focus on endometriosis. How my life and the choices I make affect and are affected by the disease. 

I promise the book is going to be as raw and honest as each post I’ve written here. Nothing will be held back. 

Why? 

It’s because of you. All of you! 

Everyone who has commented, e-mailed, Facebooked, or Twittered me (back in the day when I had a Twitter presence, that is) about how they no longer felt alone because of how vividly honest my entries were. How I identified their pain by cataloging my own. 

I’m looking forward to this project. And I sincerely hope that each and every one of you can take something from it. 

Remember: together, we are not alone. Together, we are strong. 

It’s #endometriosis Month!

Yes, we are in the middle of Endometriosis month and I’ve been swamped with grad school. While I would have loved to post every day on the subject of endometriosis and how it affects our lives, I just haven’t had the time this year. [Insert HUGE dissapointed face]

But, Jeanne over at Chronic Healing has been very active this month with endometriosis awareness posts and infertility posts. Infertility affects many with endometriosis, some who do not realize they have the disease until investigating the cause of their infertility!

Jeanne also has the Endometriosis Awareness Petition on her blog – as well as in my sidebar. PLEASE SIGN IF YOU HAVE NOT DONE SO!!  This month is all about education and awareness! We need MORE signatures!!!

If you have a blog or website, just copy and paste the following code onto your site. Help make a change for the millions of women who suffer silently with this disease.

<a href=”http://www.gopetition.com/petitions/endometriosis-awareness-understanding/sign.html”><img width=”206″ height=”60″ border=”0″ alt=”GoPetition” title=”Create Endometriosis Awareness &amp; Understanding (powered by GoPetition)” src=”http://www.gopetition.com/counters?pid=22963&amp;t=2” /></a>